#11
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wow this seems to be a constant problem, I hate this system, if the GP recommends you would think they should listen.
I have got to apply for our BB next month as Grayson is having PEG and surgeon says he is entitled as he may need to rush to a hospital and I am dreading another argument.

I am sorry you are having such a hard time. *hugs*
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(07-23-2010, 08:59 AM)graysonsmum Wrote: wow this seems to be a constant problem, I hate this system, if the GP recommends you would think they should listen.
I have got to apply for our BB next month as Grayson is having PEG and surgeon says he is entitled as he may need to rush to a hospital and I am dreading another argument.

I am sorry you are having such a hard time. *hugs*

Im assuming he is still under 2 years old and is the peg for a feeding pump? Is this the case?
If so it classes as medical equipment and should merely be a formality under the guidance for a blue badge issued to councils.
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(07-22-2010, 09:12 PM)amberash Wrote: Hi Daniel

a typical journey is him absolutely refusing to walk most days. He will walk about four houses before he has a meltdown. He runs on the road, no sense of danger and completely refuses to get in major buggy. He tries to tip it over and struggles. We don't go out at the moment as its not safe and have no car,his personal assistant wont take him outdoors because she cant handle his behaviour. He kicks, bites and screams if hears a loud noise. His school say he has more of behaviour problems than learning problems. When he refuses to move nothing can make him and i have to physically pick him up, which is difficult as he is a big five year old.

He is angel at school and holds the teachers hand a the few trips that take but wont do it home. They know this and tell me they are structured and that he really likes school.
I am a prisoner in my own home. I sometimes have to leave my girls on the road or in a car park to stop him from killing himself, have had loads of near misses with cars. He turned down as he is toilet trained in days but needs adult support to wipe and prompting to go. Also dm said he can do a puzzle so he does not have a severe learning disability.

Thanks for all your help
Would the specialists or his teachers be likely to support you in the way he is at home?
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(07-23-2010, 03:35 PM)Daniel Wrote:
(07-23-2010, 08:59 AM)graysonsmum Wrote: wow this seems to be a constant problem, I hate this system, if the GP recommends you would think they should listen.
I have got to apply for our BB next month as Grayson is having PEG and surgeon says he is entitled as he may need to rush to a hospital and I am dreading another argument.

I am sorry you are having such a hard time. *hugs*

Im assuming he is still under 2 years old and is the peg for a feeding pump? Is this the case?
If so it classes as medical equipment and should merely be a formality under the guidance for a blue badge issued to councils.

Yes Daniel he is only 18 months and will be for feeding him, they said that as he has to be in a hospital within 1 hour if any problems occour which mean he should get a bb, I have read the form and it seems this is the case but listening to stories on him I am not sure
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(07-23-2010, 05:30 PM)graysonsmum Wrote: Yes Daniel he is only 18 months and will be for feeding him, they said that as he has to be in a hospital within 1 hour if any problems occour which mean he should get a bb, I have read the form and it seems this is the case but listening to stories on him I am not sure
The council have no legal right to reject you on the basis of the medical equipment Smile
After all many parents use the pump in the car like we do Smile and that would give automatic acceptance for the badge
It can become harder if after the age of 3 they dont have higher rate mobility but even then there are ways Smile
However if they do turn you down please let me know and ill look into it for you personally Smile
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